May 22, 2009

Survey about genetic counseling

I am a HUGE fan of participating in research (a residual from my college years trying to get subjects for my psychology research!).   Hannah has been involved in many studies, from a biomedical one studying how folate is absorbed in the Ds metabolism to the Carolina Communication Study to local university studies on memory and phonemic awareness.  I do every research survey that comes my way.   So here's a new one that the NDSS is supporting, and note that you don't have to have any experience with genetic counseling to participate.

Parents of children with Down syndrome and adult siblings of persons with Down syndrome are invited to be in a web-based, survey research study. The purpose of this Penn State study is to learn more about needs and expectations for genetic counseling.  No prior experience with genetic counseling is necessary.  The survey takes about 30 min to complete.  If you are interested in being in the study, please, go to General results will be shared with the National Down Syndrome Congress at the completion of the study.  For more information contact Kathy Peters, MS at 814-865-1392 or Please, please, please help this research project on genetic counseling!

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