Showing posts with label advocacy. Show all posts
Showing posts with label advocacy. Show all posts

October 18, 2012

Adaptive sports "Buddies"?

Hannah has had her share of adaptive sports teams.   We've done Challenger Softball,  Miracle League, TopSoccer and Adaptive Dance in various towns.

While she somewhat enjoyed it, the programs seemed to be a bit flat.   There were some "helpers" who attended the entire season, but most of the volunteers would just come once or twice.  When Hannah was little, she wasn't going to latch on to a stranger.  She wasn't interested in a teenager who was there for the community service hours.   She did best when she had consistent volunteers who were around enough to build a relationship.

Still, even when the volunteers were top notch, they were way too nice.   Really, is it a good plan to let Hannah think she can make 15 goals in a row while the volunteer is faking missing the ball?  She doesn't need false success.  She needs skills.  She needs reality.  She definitely doesn't need more ego.   She has the highest self-esteem of anyone I know!  

It's not just volunteers...frequently it's parents who over-praise.

Superficial success is just ego stroking.  It doesn't teach anything of value.   Instead, provide realistic feedback.  Describe what you see: "I saw you running quickly to try to catch that ball." , "That was interesting!", "You were smiling out there."   Hold back on the "attagirl" comments.

This goes for more than sports--school work, art, playing games, chores, etc.
Describe that picture--honestly--"I see that you used a lot of blue."  (not:  I LOVE it!!  Thank you SO much!!)

I know that volunteers have the best intentions.  But making things too easy, too fabulous, too fun can be detrimental.

Praise is not encouragement.

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This was spurred on by a comment by Hannah today.  She is in a noncompetitive homeschool league, which she enjoys.  It's much harder work to keep up with the other players.  They naturally accommodate Hannah's abilities, but she knows she's not as fast as the other kids.   Today she wanted to skip soccer.  We talked about it a bit.  Fortunately, I didn't want to go to soccer either, so she managed to win me over.   Not too much later she came to me and said, "I love TopSoccer" (the adaptive soccer program she was in a couple years ago).    I replied, "You liked that, didn't you?  But now you have a more challenging soccer team.  Did you like TopSoccer or did you just like Coach Keith? (who happens to be a firefighter--Hannah's dream job)"    She replied, "I always got goals at TopSoccer."  

Of course, I don't want my daughter to feel like a failure, but I do want her to own her abilities.  I don't want any of my children to feel that they are The Best at Everything.

Hannah's favorite and reliable Buddy, AKA Daddy




October 12, 2010

#12/31 Awareness and Advocacy--that's what it's all about

See these good people?  They are friends of mine.  Stephanie won her age group at the BuddyWalk 5K on Saturday!   Ed, her husband, placed second in his category!

There are several things that make them remarkable.   Ed has been working very hard to lose weight this year.   By eating healthy and exercising he has lost over 100 pounds in 10 months!  At his first race back in the spring, he had to walk for a good part of the race.  Now he's coming in second place!   He's been chronicling his weight loss at his blog.

They also are smart, funny people who like to laugh.

They're from Texas, and they are surviving--and thriving in--the culture shock of central Virginia.

They home school their son.

I don't know if they've ever had any personal experience with Down syndrome before they met Hannah, not that it matters.  

Saturday was Stephanie's birthday, and she chose to spend it running to support the Down syndrome community.  How cool is that?

What is even more cool is the comment she left me yesterday:
Great pics from the Buddy Walk. Sorry to hear that Lois has a viral infection. Ed and I sent our swabs back to the Be The Match registry last week, so we should be official as soon as they're processed. I didn't know anything about the bone marrow registry before I read Lois's mom's blog, so I know there are lots of people who will register once they know it's there. Sending lots of prayers up for Lois and her family.

The power of Blogging thrills me! 


(In related news, Lois is home from the hospital and does not have a virus.  She had a reaction to a medication which mimicked an infection.   She's still struggling to recover from the effects of both chemo and the reaction, but no fever right now.  Lois, please sleep so your parents can rest as well!) 

June 29, 2009

Making the invisible visible

This music video is titled "Difference is Normal". It was filmed in various Middle Eastern countries. It is sung in Arabic but has English subtitles. Since Kate is learning Arabic to prepare to live in Jordan, I thought this was especially interesting.



There are lots more video clips from the Sprout Touring Film Festival on YouTube. The festival showcases films by, for, and about people with developmental disabilities. Sprout's motto is "Making the invisible visible". Here's their link: Sprout