We've had quite the year or two. Too much to fill you in, but you'll have to go with what I've got.
When we last chatted, January 3rd 2013, was the day before Hannah was diagnosed with endocarditis. She had been having random seemingly unrelated health issues. Fevers, not much stamina, sore toe, headache, sore finger, night sweats. All days apart--no rhyme or reason. We ended up in our FAVORITE pediatrician who did some bloodwork, which showed wacky levels of several things. This bought us a trip to the hematology/oncology clinic at our local teaching hospital (MCV, Richmond, VA).
Short story, before giving Hannah a marrow biopsy, a medical student suggested that we have an echocardiogram and that's how she got a diagnosis of endocarditis. She was admitted and stayed for a couple nights, getting a PICC line (a heavy duty long-active IV that deposits medication close to the heart, and allows blood draws without new needles) and started heavy antibiotics. She was discharged on a Sunday. We had a home nurse come to teach us how to use the IV medications. 48 hours later we rushed Hannah back to the hospital. She was in agony--abdominal pain. She was admitted. Many many tests and 36 hours later they diagnosed right kidney failure. Apparently she had a clot or vegetation (that's what they call the endocarditis bacteria colony breaks away).
She was in the hospital for nearly a month with many other ancillary problems (seizure from a Vitamin K shot, tendonitis--can't walk, bone marrow biopsy to rule out leukemia, etc). Once she was ambulatory we had 6 more weeks of home IV treatment. She is WHOLE. She will have to take blood pressure medication for the rest of her life due to her kidney problem, but if that's the worst, we can live with that.
Did I tell you that Chris graduated from William and Mary? And that he was accepted to Yale and UNC-Chapel Hill for graduate school? He chose Chapel Hill. He's just starting his second year in their chemistry PhD.
Thanks for being here--it's been a long wait, but I'm back--at least for today!